Nathan's Journey through Cranioynostosis

This is a video montage I made for my little man.

Make video montages at www.OneTrueMedia.com

Home at last!

HOME AT LAST!!!! It feels sooooo good to be home! After 5 days in the hospital, I am happy to have my little dude back in his own bed. He had some good days and some not so good days, but once he got his eyes opened he was a totally different boy! His demeanor changed dramatically! I'm going to post some links to the photos I uploaded on to Facebook. Thanks for your thoughts and prayers. He still has a long recovery road but he is doing great!

Day before surgery
Surgery Day
Recovery Day 1

Recovery Day 2
Recovery Day 3
Recovery Day 4

Still in the hospital...

Well it has been a couple of days since I've been able to update. Nathan is still in the hospital. The last couple of days have been up and down. He's been running a fever anywhere from 37.8 to 39.8. (100-103.6) When he has a fever they have to recheck every hour day and night, when he doesn't they only check every 4 hours. It makes for long nights when they check every hour. His incision is healing nicely. I tried to count the stitches but I keep loosing track. It's a lot. His swelling is going down. Last night he was able to open one eye and has been slightly happier since then. My mom stayed with him last night so that I could come home and get some sleep. Yesterday they were talking about letting him some home on Tuesday (today) if his fever was under control and if his blood work numbers came back good. This morning they drew blood and his hemacrit level was in the 20s. I don't know what that means but we should find out today if he'll need another transfusion. I am waiting to go back to the hospital now. I tried to go earlier and had a flat tire. Definitely not what I wanted today! I think that is everything that has happened really. Just trying to control his temp these days. Thanks for the prayers!

PICU update

Good Evening. I am updating this from the adult hospital next door. I have been kicked out for shift change. Currently Nathan is still in PICU but is being moved to a real room! Originally they told us he was staying another night but changed their minds. I think they are moving him because a trauma came in  this evening. It was very hectic in there. He is still getting morphine (he hates the initial push of the meds) and tylenol. His temp is still at 38.9 (102.something) That is semi-normal for a big surgery like this. He has kept his food down today! His eyes are swollen shut and they are black with a hint of purple. Literally. That's about all I have time to say right now. I need to go be with Nathan when they move him. Update again tomorrow. Good Night.

Surgery is over!!!!

I'm finally getting a chance to update on his surgery. Everything went great! We had a slight delay this morning, but our doctor found him a bed in ICU so surgery went on. Nothing unexpected happened. They said it was uneventful. He spent about 3 hours in recovery because during his surgery they gave away his bed. No big deal, just inconvenient. Of all the things that could have gone wrong that was not a big deal.

We saw him about 1 hour post op and he looked swollen already. He did get a bottle of Pedialyte at 4 which he threw up almost immediately. He was given some Tylenol/codeine for his pain. It was pretty uneventful in recovery. He was moved to PICU at 5:30 and he started getting very fussy. I could tell he was hurting but there was nothing that could be done as far as pain management with out a doctors orders. I had to leave for hsift change at 6:30 and decided to come home and rest. He's gonna need me a lot tomorrow and I need to be rested. Thank you to all those who sat at the hospital with us. Much appreciated. I'm heading off to eat some dinner and go to bed. I'll upload pictures tomorrow. Bye

waiting update 10:45 am

They called us again and said that the neurosurgeo

n (Dr. Dilustro) is finished with his part and the plastic surgeon (Dr. Magee) has taken over. Everything is still going well and he looks fantastic.

waiting update 9:45 am

The nurse called us and said everything is going great!